Thursday, April 21, 2011

The Magical Mystery Tour is coming to take you away!

Roll up, roll up for the magical mystery tour, step right this way.
Roll up, roll up for the mystery tour.
Roll up, roll up for the mystery tour.
Roll up (AND) THAT'S AN INVITATION, roll up for the mystery tour.
Roll up TO MAKE A RESERVATION, roll up for the mystery tour.
The magical mystery tour is waiting to take you away,
Waiting to take you away.


Great lyrics right? You can hear the song in your head as you read the words. Heck, maybe you even start to sing it a bit. Then you start to think about it and it becomes much more than just a fun Beatles song, its starts to have some meaning...we're all on a Magical Mystery Tour. Our reservations are made by a higher power and just by being born we're along for the ride. Well this blog is going to be about my ride. Good thing I always wear my seat belt, cause it's been bumpy and the road signs I've been reading all say "Caution! Curves Ahead!!"

On April 5, 2011, my life was turned upside town when I was told that I had breast cancer. At 35 with 2 small kids, this was an absolute nightmare. I put on a brave face and told everyone that "I was going to kick cancer's ass" but I was terrified.

I think my journey to diagnosis is very unusual, but a happy accident. Just over a month earlier, on Feb. 25th I had a laproscopic tubal ligation surgery. It was very routine, no big deal at all. I had the surgery on a Friday and by the next Tuesday my right armpit area was sore & tender. The soreness progressed until Thursday when it was painful. In the shower that morning I was feeling the area when I found a small lump in between my right breast & the armpit. I decided to call Dr. Bachamp, my OB/GYN, and have it checked, even though I had been there just a month earlier. She ordered a mammogram & sonogram, then referred me to a surgeon, Dr. Macy. He decided to remove the lump rather than do a needle biopsy. My lumpectomy was scheduled for March 31st. Neither doctors were worried about the lump, both believing that it would be benign.

The next Tuesday, April 5th my surgeon called and said the news was "Kind of a bummer, there was some cancer in the tumor."  Kind of a bummer......probably the biggest understatement I've ever heard. From that phone call, my parents and I were in his office just hours later to get a better understanding of what was going on and to schedule another surgery. (are you keeping track...this would be #3!) On the 7th I was back in the operating room, after a brief stop in radiology. Radiology did what they call a Sentinel Node dye test. Essentially they inject radioactive dye into the area where the tumor was removed, have me massage myself (yes, you're probably thinking the same inappropriate things that I am...), then use an x-ray to see if the dye worked itself into a particular lymph node. In my case, no such luck, which meant the removal of all the lymph nodes.

By this time I was comparing the radiology department to underground catacombs, or some complex bunker system. I was laying in a bed the whole time while my chauffeur, Justin wheeled me everywhere. It all started to blend in, I was thoroughly lost and they hadn't even given me drugs yet! After the x-ray, I was subjected to another 'procedure' where they inserted a metal wire into my breast area, marking where the tumor was previously removed. If it wasn't shocking enough to look down and see a wire/needle thingy sticking out of your boob, I was seriously unprepared for what came next. The techs covered the needle by taping a styrofoam cup over the needle, so I wouldn't bump it. Visions of Madonna & Lady Gaga were now in my head. I remarked to the techs that my bra cup size was now "8 oz."

A pause here to tell you, that if you don't know me, sarcastic, inappropriate & wickedly funny things sometimes come out of my mouth. I apologize if anyone is offended, but if you're that sensitive, you probably shouldn't be reading this!!! Don't say I didn't warn you!

Okay, so now I'm back at surgery waiting, showing of my new accessory to my parents & boyfriend, who didn't know whether to laugh, cry or be offended. Humor is my weapon, so I use it often. Just a short stop here so the lovely anesthesiologists can mercifully drug me before I am wheeled down yet another hall and into the operating room where, by the way, it is freezing. I remember the mask being over my mouth for about 7 1/2 seconds and then nothing until I wake up in recovery and my right side is on fire. I usually try to tough out the pain, but man, this was bad. I remember at least 2 shots of morphine, but there may have been a third, who knows at this point.

Now we're moving again, wheeling me up to my room. This surgery was a lot more invasive than the other two, so I get to be an over-night guest of Salina Regional Health Center. Good thing too, because I was seriously out of it. When the nurses had to get me up to move to the bed in my room I'm pretty sure I cried. My side was screaming, maybe I was too. So there I lay, drifting in and out, quite sure I was talking to myself at times, trying to figure out what they could have done to me to make it so painful. When I became more lucid I discovered that I had a new friend - a drain bag which was eventually named Herbie.

This is getting really, really long, isn't it? Sorry!

So, recovery @ hospital, then recovered 2 days at my parents house. Now fast forward to Tuesday, April 12th when I get another "bummer" from the surgeon - cancer found in 12 of the 29 lymph nodes they removed. I spent that afternoon in a puddle created by yours truly. The next day was better and by Thursday the 14th we were back in Dr. Macy's office to get the full lab report. Although the news is still bad, Dr. Macy believes that he got all of the cancer that was present and a lot of healthy tissue surrounding it, just to be sure. Surgically, there's nothing else he can do, so I get an appointment with an oncologist, Dr. Johnson, who is HIGHLY recommended. All of my doctors are wonderful people and talented physicians, all highly recommended by other patients & hospital staff.

Yesterday, the 20th I met Dr. Johnson and I have decided that I love him. He is very plain spoken, not a whole lot of "doc talk" with him. He mapped out a treatment plan, literally - he made me a diagram of what tests, treatments & how long they will take. What a wonderful resource! So now, we're moving along pretty well. Had blood drawn today, have a CAT scan tomorrow, 2-D echo on Monday, catheter for Chemo inserted on Monday & a bone scan on Tuesday.

Chemo should start around May 4th. Waiting is the hardest part, but looking at the calendar, we have wasted no time in getting on the road to recovery, starting the next leg of the Magical Mystery Tour.

More later, I don't want to bore you now. I promise to keep this updated. And I will REALLY TRY to not make posts this long ever again!
Feel free to comment, but keep it positive!!! I've no time for Negative Nellies on this journey!!

Buckle up & have a safe trip!
Marjie

7 comments:

  1. Let the kicking ass commence!!!!

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  2. Okay...maybe just me, but this was not long. I go on longer about a great coupon deal! Your journey is not only that, but also a message to young women everywhere that they are not immune. I wish you the best!

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  3. I do love your quirky sense of humor. I believe it keeps you strong so keep smilin Marjie!

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  4. Marjie, you are a great writer. I felt as though I was there with you. Been there done that but never have had to face a fight like yours. You are a fighter. I pray for you everyday that you will stay healthy and positive. You will be an inspiration for so many people. You Rock!!!!!

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  5. I am so sorry to hear that you've had to go through all this Marjie. With that said, I have to tell you that you have an amazing attitude! From my experiences working in healthcare, I have noticed that the survivors have one thing in common-their positive attitude. I firmly believe that attitude is responsible for 95% of the healing process! Keep your chin up and this will all be behind you before you know it. I will be thinking of you on the 4th and keeping you close in prayer;)

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  6. Ps...I'm looking forward to reading more;)

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